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Rally 09 fundraiser
Raising funds for the LDN research trust
Because of one persons reaction to LDN
Her MS:
MS is different for everyone, what primary symptoms does she experience today? Fatigue, tiredness, incontinence, self evacuation, memory loss, inability to walk, fidgety leg (uncontrolled muscle spasms) but the main result is loss of dignity. Remember these are her main symptoms, she is affected by a whole host of other MS symptoms.
Imagine the need to urinate, but by the time you get to the bathroom you have wet yourself.
One thing that is very hard to describe to non MS sufferers is fatigue, the usual response is ‘I get tired too’. MS fatigue is very difficult to describe, the closest analogy is having severe flu where you are so weak you can’t get out of bed. She is a keen gardener, but on most days she does not have the strength to prune one rose.
This is what living with MS is like for her, from my point of view seeing your mother being slowly ravaged by this horrible illness impossible to describe.
LDN Results:
Initially she was understandably very nervous about starting LDN, as anyone is with a new medical regime. Her response to the LDN was almost instantaneous; the main symptom that has been relieved is fatigue. Now remember the flu analogy above and when you recover it is such a relief and how you feel when you are back to firing on all cylinders.
The other symptoms are more manageable because her fatigue has been greatly reduced:
•Sleep has improved with her fidgety leg bothering her less.
•The walking has improved (she does not stumble as much).
•As her walking has improved, she can make it to the toilet.
•Her memory has improved.
We accept the current results of LDN may not last and wear off over time. We hope not, the changes over two weeks have been outstanding. Not every day is a magical day, she still suffers from fatigue and the symptoms of MS are always there.
Read the full article in the July LDN newsletter here, page 12 and 13.
LDN Research Trust
The trust are trying to raise the awareness for the treatment of LDN. What is needed is a full double blind trial of LDN, if the results back up the current experiences felt by people taking LDN, this will give the BMA another weapon in their armory for the treatment of MS.
Her MS:
MS is different for everyone, what primary symptoms does she experience today? Fatigue, tiredness, incontinence, self evacuation, memory loss, inability to walk, fidgety leg (uncontrolled muscle spasms) but the main result is loss of dignity. Remember these are her main symptoms, she is affected by a whole host of other MS symptoms.
Imagine the need to urinate, but by the time you get to the bathroom you have wet yourself.
One thing that is very hard to describe to non MS sufferers is fatigue, the usual response is ‘I get tired too’. MS fatigue is very difficult to describe, the closest analogy is having severe flu where you are so weak you can’t get out of bed. She is a keen gardener, but on most days she does not have the strength to prune one rose.
This is what living with MS is like for her, from my point of view seeing your mother being slowly ravaged by this horrible illness impossible to describe.
LDN Results:
Initially she was understandably very nervous about starting LDN, as anyone is with a new medical regime. Her response to the LDN was almost instantaneous; the main symptom that has been relieved is fatigue. Now remember the flu analogy above and when you recover it is such a relief and how you feel when you are back to firing on all cylinders.
The other symptoms are more manageable because her fatigue has been greatly reduced:
•Sleep has improved with her fidgety leg bothering her less.
•The walking has improved (she does not stumble as much).
•As her walking has improved, she can make it to the toilet.
•Her memory has improved.
We accept the current results of LDN may not last and wear off over time. We hope not, the changes over two weeks have been outstanding. Not every day is a magical day, she still suffers from fatigue and the symptoms of MS are always there.
Read the full article in the July LDN newsletter here, page 12 and 13.
LDN Research Trust
The trust are trying to raise the awareness for the treatment of LDN. What is needed is a full double blind trial of LDN, if the results back up the current experiences felt by people taking LDN, this will give the BMA another weapon in their armory for the treatment of MS.
Why raise funds for the LDN research trust?